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PharmaTimes magazine – April 2017
To gain access to this data, the public may have to be willing to share their own genetic information – but is this something they want?…Read more >>>
Personalized medicine promises much. New initiatives aim to harness technology and genomics to create bespoke medicine, customizing your healthcare like your Facebook profile. Instead of relying on generic practice guidelines, your doctors may one day use these new analytic tools to find the ideal treatment for you.
26 March 2017, Oxford University Press
But this precision has a price that science and medicine don’t acknowledge. Personalized medicine demands that we all contribute our medical histories and genomes to the big data research pool. The science works only if the numbers are very large; so large that some envision every patient as a subject whose medical data will be shared for research. As this future unfolds, you will, of course, be assured of your privacy. Unfortunately, that’s a promise science cannot honestly make and you should not believe….Read more >>>
22 November 2016, MIT Technology Review
In August 2015, Samantha Schilit went to her primary care doctor to get a blood draw. A PhD candidate at Harvard specializing in human genetics, she was itching to unlock the secrets of her genes with a test called whole-genome sequencing, which provides a full readout of a person’s DNA…Read more >>>
13 September 2016, Undark
WHEN PRESIDENT BARACK OBAMA hosted a summit earlier this year on his research initiative to gather DNA samples and medical histories on a million volunteers, he highlighted the delicate balance between science and privacy inherent in genomic information…Read more >>>
20 August 2016, Trendintech
But, because there is a significant amount of personal data stored on one single database it poses high-security risks that people’s medical histories may be accessed for the wrong reasons. However, researchers from MIT’s Computer Science and Artificial Intelligence Laboratory and Indiana University at Bloomington have recently disclosed…Read more >>>
Researchers from MIT’s Computer Science and Artificial Intelligence Laboratory and Indiana University at Bloomington have developed a system for protecting the privacy of patient information in genomic databases used for medical research.
17 August 2016, Health Data Management
A cryptographic technique called differential privacy permits database queries for genome-wide association studies (GWAS), which try to find correlations between particular genetic variations and disease diagnoses, while reducing the chances of compromising personal health information to almost zero, according to researchers writing recently in the journal Cell Systems…Read more >>>
15 August 2016, Nature News
Large genomic databases are indispensable for scientists looking for genetic variations associated with diseases. But they come with privacy risks for people who contribute their DNA. A 2013 study1 showed that hackers could use publicly available information on the Internet to identify people from their anonymized genomic data…Read more >>>
19 March 2016, GenomeWeb
The patients — Barbara Zeughauser, Ken Deutsch, Runi Limary, and AnneMarie Ciccarella — received genetic testing from Myriad to assess their risk for cancer. In February, asserting their rights under the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule, they requested access to all genetic variants identified during testing….Read more >>>
Four new grants from the National Institutes of Health will support research on the ethical, legal and social questions raised by advances in genomics research and the increasing availability of genomic information.
17 May 2016, National Institutes of Health
The awards will fund researchers at interdisciplinary centers through the National Human Genome Research Institute’s (NHGRI) Centers of Excellence in Ethical, Legal and Social Implications Research (CEER) program. The projects will examine the use of genomic information in the prevention…Read more >>>
Researchers at Vanderbilt University School of Medicine have received a four-year, $4-million grant from the National Institutes of Health to establish a new center for the study of privacy concerns associated with the use of genomic information, the NIH announced today, May 17.
17 May 2016, EurekAlert
The Vanderbilt Center for Genetic Privacy and Identity in Community Settings will examine the likelihood that lapses in protecting genomic information allow people to be identified, how people perceive such risks, and how effective legal and policy efforts are in reducing them…Read more >>>