Taking a DNA test to learn about your ancestry or health can be fun, but it requires the transfer of sensitive information: your genetic data. 

18 December 2017, Metro USA

When sending in your DNA sample, it’s important to get a clear picture of who owns that information and who will be able to see it. Before taking any test, always read the terms of service… Read more >>>

Study: State-level disclosure laws affect patients’ eagerness to have their DNA tested

12 December 2017, MIT News Office

Different types of privacy laws in U.S. states produce markedly different effects on the willingness of patients to have genetic testing done, according to a new study co-authored by an MIT professor… Read more >>>

Personal DNA testing kits, like 23andMe, may pose serious privacy concerns, Sen. Chuck Schumer warns.

28 November 2017, Metro USA

EHRs offer significant benefits compared to previous paper-based systems and have been adopted by over 96% of critical care hospitals and over 83% of regular hospitals…. Read more >>>

How much is your life worth to hackers? Your electronic medical health record (EHR) could be worth hundreds or even thousands of dollars.

14 April 2017, Forbes

EHRs offer significant benefits compared to previous paper-based systems and have been adopted by over 96% of critical care hospitals and over 83% of regular hospitals…. Read more >>>

“It’s basically like you have no privacy, they’re taking it all,” said Joel Winston, a consumer protection lawyer. “When it comes to DNA tests, don’t assume you have any rights.”

18 October 2017, Gizmodo

You probably wouldn’t hand out your social security number without having a pretty good idea of how that information was going to be used, right… Read more >>>

Your DNA contains a lot of personal information. Simply speaking, genome is the code that runs in nucleus of almost every cell in your body. This extremely sensitive information has great potential for better healthcare and understanding of human nature. But, for sure, being careless about privacy is playing with fire when it comes to DNA.

23 October 2017, The Merkle

Here is the real-world example. Let’s suppose you have had a genetic testing for any reason last year. Today your insurance company refused… Read more >>>

The Global Alliance for Genomics and Health (GA4GH) this week unveiled its strategic plan for the next five years. Called GA4GH Connect, it calls on the alliance’s 500-plus members to develop new data sharing standards for use in major international genomic data initiatives.

17 October 2017, Genome Web

GA4GH has already agreed to work with 13 initiatives, including Genomics England and Australian Genomics, which it calls driver projects, to develop and release new standards for genomic data discovery… Read more >>>

Genetic tests and genome sequencing are generating terabytes of sensitive private data. How can they be kept safe?

28 September 2017, Protomag (Massachusetts General Hospital)

Ronald Cohn pediatrician-in-chief of The Hospital for Sick Children in Toronto, tells the story of a young patient who was brought to him with a connective tissue disorder. The logical next step was a genetic test… Read more >>>

Genomics company Human Longevity Inc. (HLI) made a study on predicting a person’s face and other qualities based on genetic information. HLI says that face-prediction technologies could pose risks to a person’s privacy and that stricter guidelines for genome databases must be established. Since the study’s release, many experts have voiced their opinions, with some saying that privacy risks floated by HLI are overblown.

23 Septembre 2017, Wall Street Pit

Many of the promising applications of genome sequencing lie in associating genotypes (the unique genome set of a person) with physical… Read more >>>

Kimberly White/Getty Images for Vanity Fair

Is it safe to give your genetic data to 23andMe? CEO Anne Wojcicki explains the DNA testing company’s privacy protections on the latest Too Embarrassed to Ask.

22 Septembre 2017, Recode

23andMe has been around for more than 11 years, but it’s just now getting to “critical mass,” CEO Anne Wojcicki says, thanks in part to a recent $200 million funding… Read more >>>