Browse an up-to-date collection of news from the major scientific and media publishers. Click on the news to be immediately redirected to the original source. Please contact us about any other relevant news.

32M Patient Records Breached in First Half of 2019, 88% Caused by Hacking

Protenus Breach Barometer shows healthcare data breaches have already doubled this year from the total 15M breached in 2018 – with hacking incidents breaching the most patient records.

1 August 2019,

More than 31 million patient records have already been breached in the first half of 2019, with hacking causing the majority…Read more >>> 

Why home DNA tests might not be as private as you think.

Your genome and your privacy.

9 August 2019,

Spit in the tube, seal up the envelope, wait […] for less than $200. […] But in an uncertain regulatory environment with lax privacy standards, you might want to double-check the true price before letting your curiosity get the best of you….Read more >>> 

‘Could your DNA data be used for Facebook ads?’ Wellcome genetics panel asked

An astonishing panel of world-leading researchers and business leaders in personal genomes revealed the titanic issues facing the genomics sector at the Wellcome Genome Campus this month.

26 April 2019, Cambridge Independant

The public talk was titled ‘Sharing your personal genome: from genetic testing to ancestry’, the first in a new series organised by Wellcome Genome Campus Advanced Courses & Scientific Conferences…Read more >>> 

A little-known AI method can train on your health data without threatening your privacy

We have compiled healthcare data breach statistics from October 2009 when the Department of Health and Human Services’ Office for Civil Rights first started publishing summaries of healthcare data breaches on its website. Machine learning has great potential to transform disease diagnosis and detection, but it’s been held back by patients’ reluctance to give up access to sensitive information.

11 May 2019, MIT Technology Review

In 2017, Google quietly published a blog post about a new approach to machine learning. Unlike the standard method, which requires the data to be centralized in one place, the new one could learn from a series of data sources distributed across multiple devices…Read more >>> 


David Shaw: The hidden harms of “genomic volunteering”

There are huge benefits to sequencing as many genomes as we can—every genome sequenced moves us a step closer to unlocking life-saving treatments

3 May 2019, BMJ Opinion

NHS England is to offer free genomic sequencing for patients with serious genetic conditions, including cancer. Healthy citizens will also be able to have their genomes sequenced under a new scheme announced in January…Read more >>> 


The US urgently needs new genetic privacy laws

TWENTY YEARS AGO, you had about a 1 in 6 billion chance of knowing someone who’d had their DNA sequenced. Today, almost every American can name someone who’s had some form of genetic testing. 

1 May 2019, HIPAA Journal

The rise of DNA data has legal experts increasingly concerned that the United States is not effectively protecting consumers from the many privacy risks…Read more >>> 


Medical DNA sequencing leads to lawsuits and legal questions

As DNA testing gallops ahead, doctors face wrenching questions about legal risks, protecting patients’ privacy, and the quality of the genetic information they’re providing—and they need help.

26 April 2019, Science Mag

“The genome is static, but our ability to analyze it and interpret it is undergoing dramatic change,” said James Evans, a geneticist at the University of North Carolina in Chapel Hill. “We don’t understand most of these variants…Read more >>>