News

Browse an up-to-date collection of news from the major scientific and media publishers. Click on the news to be immediately redirected to the original source. Please contact us about any other relevant news.

Apple, in Sign of Health Ambitions, Adds Medical Records Feature for iPhone

In the latest indication of Apple’s growing ambitions in the digital health market, the tech giant on Wednesday unveiled a new feature that would allow users to automatically download and see parts of their medical records on their iPhones.

24 January 2018, The New York Times

It takes just a few minutes to put some spit into a vial, but that little bit of spit can yield volumes of deeply intimate data…Read more >>>

The Present and Future Asymmetry of Consumer Genetic Testing

Taking a DNA test to learn about your ancestry or health can be fun, but it requires the transfer of sensitive information: your genetic data. 

18 December 2017, Metro USA

It takes just a few minutes to put some spit into a vial, but that little bit of spit can yield volumes of deeply intimate data…Read more >>>

How privacy policies affect genetic testing

Study: State-level disclosure laws affect patients’ eagerness to have their DNA tested

12 December 2017, MIT News Office

 

Different types of privacy laws in U.S. states produce markedly different effects on the willingness of patients to have genetic testing done, according to a new study co-authored by an MIT professor… Read more >>>

Your Electronic Medical Records Could Be Worth $1000 To Hackers

How much is your life worth to hackers? Your electronic medical health record (EHR) could be worth hundreds or even thousands of dollars.

14 April 2017, Forbes

EHRs offer significant benefits compared to previous paper-based systems and have been adopted by over 96% of critical care hospitals and over 83% of regular hospitals…. Read more >>>

What DNA Testing Companies’ Terrifying Privacy Policies Actually Mean

“It’s basically like you have no privacy, they’re taking it all,” said Joel Winston, a consumer protection lawyer. “When it comes to DNA tests, don’t assume you have any rights.”

18 October 2017, Gizmodo

You probably wouldn’t hand out your social security number without having a pretty good idea of how that information was going to be used, right… Read more >>>

Don’t Sell Your DNA to the Corporate Devil

Your DNA contains a lot of personal information. Simply speaking, genome is the code that runs in nucleus of almost every cell in your body. This extremely sensitive information has great potential for better healthcare and understanding of human nature. But, for sure, being careless about privacy is playing with fire when it comes to DNA.

23 October 2017, The Merkle

Here is the real-world example. Let’s suppose you have had a genetic testing for any reason last year. Today your insurance company refused… Read more >>>

Global Alliance for Genomics and Health Releases Strategic Plan, Announces Driver Projects

The Global Alliance for Genomics and Health (GA4GH) this week unveiled its strategic plan for the next five years. Called GA4GH Connect, it calls on the alliance’s 500-plus members to develop new data sharing standards for use in major international genomic data initiatives.

17 October 2017, Genome Web

GA4GH has already agreed to work with 13 initiatives, including Genomics England and Australian Genomics, which it calls driver projects, to develop and release new standards for genomic data discovery… Read more >>>