Privacy experts have identified participants in the Personal Genome Project using “de-identified” data.
1 May 2013, MIT Technology Review
The project does not guarantee privacy for those who sign up. Indeed, the participants can reveal as much information as they like, including their ZIP code, birth date and sex. However, the data is ‘de-identified’ in the sense that the owners names and addresses are not included in their profiles on the PGP website and this generates a veneer of privacy. Today, Latanya Sweeney and colleagues at Harvard show that even this is practically useless in keeping owners identities private… Read more >>>