New Community Challenge Seeks to Evaluate Methods of Computing on Encrypted Genomic Data

news23Researchers from academia and industry have launched the second iteration of a community challenge that aims to evaluate the performance of methods of computing securely on genomic data in remote environments like the cloud.

14 Nov 2014, Genome Web

The challenge, which focuses on methods of computing on encrypted data, is organized by researchers from Indiana University, the University of California at San Diego, Emory University, Vanderbilt University, and La Jolla, Calif.-based Human Longevity. It is run under the auspices of the Integrating Data for Analysis, Anonymization, and Sharing (IDASH) center at UC San Diego — IDASH is one of the National Institutes of Health’s National Centers for Biomedical Computing… Read more >>>

Google Wants to Store Your Genome

news18For $25 a year, Google will keep a copy of any genome in the cloud.

6 Nov 2014, MIT Technology Review

Google is approaching hospitals and universities with a new pitch. Have genomes? Store them with us. The search giant’s first product for the DNA age is Google Genomics, a cloud computing service that it launched last March… Read more >>>

US agency updates rules on sharing genomic data

news10Changes clarify procedures for telling participants in NIH-funded studies how their data might be used.

01 Sep 2014, Nature News

The change, which expands the remit of an earlier data-sharing policy, is not expected to drastically alter research practices — many genomics researchers are accustomed to sharing their data. But the latest policy, released on 27 August, gives clearer instructions for gaining the informed consent of study participants. The NIH will now require researchers to tell study participants that their data may be broadly shared for future research… Read more >>>

UCLA Team Develops Protocol for Securely Sharing Whole-Genome Sequence Data

news23Researchers identify genetically related individuals from whole-genome sequence data without compromising the privacy of the individuals.

27 Jun 2014, Genome Web

A team of researchers from the computer science, bioinformatics, mathematics, and human genetics departments at the University of California, Los Angeles have published the particulars of a protocol that they developed to make it possible to identify genetically related individuals from whole-genome sequence data without compromising the privacy of the individuals in question… Read more >>>

How to Hide Your Genome


New encryption scheme could protect sensitive info concealed in your genes

16 Feb 2014, Science News,

As the cost of genetic sequencing plummets, experts believe our genomes will help doctors detect diseases and save lives. But not all of us are comfortable releasing our biological blueprints into the world. Now, cryptologists are perfecting a new privacy tool that turns genetic information into a secure yet functional format …Read more >>>

Bioethics Groups Launch California Genetic Privacy Resource

news23Two bioethics policy advocacy groups have teamed to create a resource to educate the public in California about genetic privacy rights that citizens have under the law.

10 Dec 2013, Genome Web

The Council for Responsible Genetics and the Alliance for Humane Biotechnology have launched the California Genetic Privacy Network, CRG said yesterday. The aim for the network is to serve as a resource for patients, consumers, and activists, and it will provide information about genetic privacy rights under California law, including in-person and online educational consultations about these issues… Read more >>>

U.K. Researchers Launch Open-Access Genomes Project

News2Plans to make personal genetic and health data freely available online spread to Europe

6 Nov 2013, Science News

Efforts to put individual genome sequences and accompanying personal health information online in a freely accessible database just got a boost in the United Kingdom…Read more >>>

Balancing privacy with public benefit

news1314Maximizing access to research data will greatly benefit science, and users can help to establish universal principles on how to do it, says Martin Bobrow.

07 Aug 2013, Nature News

Most research participants expect privacy protection and do not want their genomes or health records to be readily identifiable. Furthermore, researchers who spend time, effort and ingenuity to generate, process and manage large research data sets expect to get appropriate credit. This also relates to emerging discussions about clinical trials: there is a need for more access to patient-level data (as highlighted by the AllTrials campaign), while respecting the terms of study participants’ consent… Read more >>>

Be prepared for the big genome leak

news1314It is only a matter of time until idealism sees the release of confidential genetic data on study participants, says Steven E. Brenner.

12 Jun 2013, Nature News

Most people in the United States could soon know someone whose genome is held in a research database. Concerns are growing about our ability to properly control access to that information. Also growing among some scientists is the feeling that restricting access to genomic data fetters research. How long will it be until an idealistic and technically literate researcher deliberately releases genome and trait information publicly in the name of open science?… Read more >>>

Q&A: David Altshuler on How to Share Millions of Human Genomes

News3Geneticist describes new alliance’s plans for exchanging clinical and DNA data for genetics studies

7 Jun 2013, Science News

It’s a comment made over and over by geneticists: To fully understand the role of human genetic variation and its role in disease, researchers need to pool DNA and clinical data from millions of people. Earlier this week, more than 70 research, health care, and patient advocacy organizations, including big players…Read more >>>