There’s No Such Thing as Family Secrets in the Age of 23andMe

DNA tests are cheap and ubiquitous. For some donor-conceived people, they can unearth long-buried truths about their ancestry—and lead to unorthodox reunions.

07 Juillet 2020, Wired

JEFF JOHNSON WAS in a hurry. His lunch break was nearing its end, and he needed to catch the 6 train back to Union Square, where he worked an entry-level job at the publisher Farrar, Straus & Giroux. He flew down the stairs to the subterranean clinic on New York’s Upper East Side, into a Bond-chic windowless cave of an office. He greeted the nurse—lab technician?—he wasn’t sure which, and ducked into an exam room stocked with straight pornography he wouldn’t use….Read more >>> 



The Era of DNA Database Hacks Is Here

A major data breach shows genetic information is vulnerable to attack

30 Juillet 2020, OneZero

Onthe morning of July 19, hackers accessed the online DNA database GED match and temporarily allowed police to search the profiles of more than 1 million users that were previously not accessible to law enforcement. GEDmatch is a genealogy tool that allows users to upload their DNA profiles generated from genetic testing services…Read more >>> 



EPFL software to enable secure data-sharing for hospitals

The MedCo system aims to facilitate medical research on pathologies — such as cancer and infectious diseases — by enabling secure computations on decentralized data. The unique software has recently been deployed at three Swiss hospitals.

02 April 2020, EPFL News

“The opportunity to query decentralized databases securely, while eliminating the possibility of identifying patients, is an important lever for accelerating university clinical research…Read more >>> 



Revealed: how drugs giants can access your health records

Experts say information sold on by Department of Health and Social Care can be traced back to individual medical records

08 February 2020, The Guardian

The Department of Health and Social Care has been selling the medical data of millions of NHS patients to American and other international drugs companies having misled the public…Read more >>> 


Data privacy concerns hamper adoption, use of personal medical devices

While Americans think consumer tech is driving more connected relationships with their providers, they also see voice technology and AI with a skeptical eye.

08 Janvier 2020, Healthcare IT News

Despite the push towards healthcare digitalization and the rise of personal medical devices, just 38 percent of Americans believe proper safeguards are in place to protect their personal health data…Read more >>> 

Pentagon warns US military not to use home DNA testing kits

The Pentagon is advising members of the US military not to use DNA testing kits, warning that the popular genetic identification kits could pose a security risk.

13 November 2019, MIT Technology Review

Companies such as 23andMe and Ancestry allow people to get a breakdown of their genetic makeup and geographic heritage…Read more >>> 

Google is to get access to millions of Americans’ personal health data

Google has signed a deal with Ascension, the second-largest hospital system in the US, to collect and analyze millions of Americans’ personal health data

12 November 2019, MIT Technology Review

Eventually, data from all of the company’s patients (birth dates, lab results, diagnoses, and hospitalization records, for example) could be uploaded to Google’s cloud computing systems…Read more >>> 

Popular third-party genetic genealogy site is vulnerable to compromised data, impersonations

Researchers at the University of Washington have found that GEDmatch is vulnerable to multiple kinds of security risks. An adversary can use only a small number of comparisons to extract someone’s sensitive genetic markers.

29 Octobre 2019, University of Washington

“People think of genetic data as being personal — and it is. It’s literally part of their physical identity,” said lead author Peter Ney, a postdoctoral researcher in the UW Paul G. Allen School of Computer Science & Engineering. “This makes the privacy of genetic data particularly important…Read more >>>