It took a pandemic, but the US finally has (some) centralized medical data

Covid exposed the fragmented reality of US health records. Now an effort to bring together data from millions of patients is starting to show results.

21 June 2021, MIT Tech. Review

Scientists have been able to learn more about covid, faster, than about any other disease in history—but at the same time, the public has been shocked when doctors can’t answer seemingly basic questions….Read more >>> 

Why is it so hard to review the Johnson & Johnson vaccine? Data.

The clock is ticking for regulators looking into covid vaccine side effects. But their task is made harder by America’s fragmented data systems.

15 Avril 2021, MIT Tech. Review

 

The future of the single-shot Johnson & Johnson covid vaccine remains in limbo after an advisory panel recommended taking a deeper look into reports of rare—and sometimes fatal—side effects….Read more >>> 

 

 

COVID-19 and digital privacy

The COVID-19 pandemic has accelerated the development of digital public health and medical applications, and forced governments to use emergency powers to access health data.

07 Aout 2020, Wired

This focus of Reviews, Perspectives and comments considers the myriad ways in which digital…….Read more >>> 

 

 

There’s No Such Thing as Family Secrets in the Age of 23andMe

DNA tests are cheap and ubiquitous. For some donor-conceived people, they can unearth long-buried truths about their ancestry—and lead to unorthodox reunions.

07 Juillet 2020, Wired

JEFF JOHNSON WAS in a hurry. His lunch break was nearing its end, and he needed to catch the 6 train back to Union Square, where he worked an entry-level job at the publisher Farrar, Straus & Giroux. He flew down the stairs to the subterranean clinic on New York’s Upper East Side, into a Bond-chic windowless cave of an office. He greeted the nurse—lab technician?—he wasn’t sure which, and ducked into an exam room stocked with straight pornography he wouldn’t use….Read more >>> 

 

 

The Era of DNA Database Hacks Is Here

A major data breach shows genetic information is vulnerable to attack

30 Juillet 2020, OneZero

Onthe morning of July 19, hackers accessed the online DNA database GED match and temporarily allowed police to search the profiles of more than 1 million users that were previously not accessible to law enforcement. GEDmatch is a genealogy tool that allows users to upload their DNA profiles generated from genetic testing services…Read more >>> 

 

 

EPFL software to enable secure data-sharing for hospitals

The MedCo system aims to facilitate medical research on pathologies — such as cancer and infectious diseases — by enabling secure computations on decentralized data. The unique software has recently been deployed at three Swiss hospitals.

02 April 2020, EPFL News

“The opportunity to query decentralized databases securely, while eliminating the possibility of identifying patients, is an important lever for accelerating university clinical research…Read more >>> 

 

 

Revealed: how drugs giants can access your health records

Experts say information sold on by Department of Health and Social Care can be traced back to individual medical records

08 February 2020, The Guardian

The Department of Health and Social Care has been selling the medical data of millions of NHS patients to American and other international drugs companies having misled the public…Read more >>> 

 

Data privacy concerns hamper adoption, use of personal medical devices

While Americans think consumer tech is driving more connected relationships with their providers, they also see voice technology and AI with a skeptical eye.

08 Janvier 2020, Healthcare IT News

Despite the push towards healthcare digitalization and the rise of personal medical devices, just 38 percent of Americans believe proper safeguards are in place to protect their personal health data…Read more >>> 

Pentagon warns US military not to use home DNA testing kits

The Pentagon is advising members of the US military not to use DNA testing kits, warning that the popular genetic identification kits could pose a security risk.

13 November 2019, MIT Technology Review

Companies such as 23andMe and Ancestry allow people to get a breakdown of their genetic makeup and geographic heritage…Read more >>>