GenomePrivacy.org is a community website for sharing information about research on the technical protection of genome privacy and security. Here, you can find news and events about what is happening in the field. You can also find information on most of the active research groups and companies working on this topic and a detailed list of scientific publications.

If you are new to the topic, we recommend you to start from Genomic Privacy 101 and FAQ to build up your background knowledge.

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Recent News

How to Delete Your Data From 23andMe, Ancestry, and Other Sites

Worried about your privacy after taking an at-home DNA test? Here’s what you should know and what you can do.

29 January 2019, Consumer Reports

If you’ve sent a DNA sample such as a tube of spit to 23andMe, Ancestry, MyHeritage, or one of the many other companies that offer direct-to-consumer genetic testing, you’ve sent them the essential info…Read more >>> 

 

 

 

Genetic testing is the future of healthcare, but many experts say companies like 23andMe are doing more harm than good

There are two ways to do the testing: getting a costly but complete genetic workup through a doctor or opting for a cheaper at-home test like those sold by 23andMe.

12 January 2019, Business Insider

Clinicians and advocates criticize the at-home approach, which they say prioritizes convenience over privacy and long-term health…Read more >>>