GenomePrivacy.org is a community website for sharing information about research on the technical protection of genome privacy and security. Here, you can find news and events about what is happening in the field. You can also find information on most of the active research groups and companies working on this topic and a detailed list of scientific publications.

If you are new to the topic, we recommend you to start from Genomic Privacy 101 and FAQ to build up your background knowledge.

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Recent News

A little-known AI method can train on your health data without threatening your privacy

We have compiled healthcare data breach statistics from October 2009 when the Department of Health and Human Services’ Office for Civil Rights first started publishing summaries of healthcare data breaches on its website. Machine learning has great potential to transform disease diagnosis and detection, but it’s been held back by patients’ reluctance to give up access to sensitive information.

11 May 2019, MIT Technology Review

In 2017, Google quietly published a blog post about a new approach to machine learning. Unlike the standard method, which requires the data to be centralized in one place, the new one could learn from a series of data sources distributed across multiple devices…Read more >>> 

 

David Shaw: The hidden harms of “genomic volunteering”

There are huge benefits to sequencing as many genomes as we can—every genome sequenced moves us a step closer to unlocking life-saving treatments

3 May 2019, BMJ Opinion

NHS England is to offer free genomic sequencing for patients with serious genetic conditions, including cancer. Healthy citizens will also be able to have their genomes sequenced under a new scheme announced in January…Read more >>>