GenomePrivacy.org is a community website for sharing information about research on the technical protection of genome privacy and security. Here, you can find news and events about what is happening in the field. You can also find information on most of the active research groups and companies working on this topic and a detailed list of scientific publications.

If you are new to the topic, we recommend you to start from Genomic Privacy 101 and FAQ to build up your background knowledge.

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Recent News

It took a pandemic, but the US finally has (some) centralized medical data

Covid exposed the fragmented reality of US health records. Now an effort to bring together data from millions of patients is starting to show results.

21 June 2021, MIT Tech. Review

Scientists have been able to learn more about covid, faster, than about any other disease in history—but at the same time, the public has been shocked when doctors can’t answer seemingly basic questions….Read more >>> 

Why is it so hard to review the Johnson & Johnson vaccine? Data.

The clock is ticking for regulators looking into covid vaccine side effects. But their task is made harder by America’s fragmented data systems.

15 Avril 2021, MIT Tech. Review

 

The future of the single-shot Johnson & Johnson covid vaccine remains in limbo after an advisory panel recommended taking a deeper look into reports of rare—and sometimes fatal—side effects….Read more >>>